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Tennessee PKU Foundation News
Back to School for PKU
Written by Amy Pettit   
Wednesday, 16 September 2009

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On August 29th, families and nutritionists from the Mid-South gathered for the 1st Annual Back to School meeting for PKU.  The event was held at Methodist LeBonheur hospital in Germantown, TN.  The agenda for the meeting was to discuss back to school challenges for PKU children and to participate in a cooking class to make low protein recipes.  Chef Tim Grair was present to guide the group in making yummy dishes such as: Any Season Fruit Bowl, Golden Vegetable Coins, and Moms PKU Casserole.

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BioMarion sponsored the event and brought guest speaker Dusty Driver, who is currently on Kuvan. He discussed his life before and after Kuvan. Darla Henderson, Nutritionist with University of Tennessee Knoxville, Genetic Center, spoke about research that Dr. Denise M. Ney PhD, RD, with the University of Wisconsin-Madison, is currently conducting involving Glycomacropeptide, otherwise known as GMP, which will provide a safe alternative protein source in the PKU diet.

Last Updated ( Wednesday, 16 September 2009 )
Walk for PKU 2009
Written by Bryon McDowell   
Tuesday, 07 July 2009
Walking for PKU

 

The Tennessee PKU Foundation held three walks again this year; in Memphis, Nashville, and Knoxvile.  We had a lot of fun and raised awareness for PKU as well as some funds for research.  Thanks to everyone for their hard work and resources to pull these walks off!  Check out the links below to view the pictures for each event.

Pictures
Memphis Walk
Nashville Walk
Knoxville Walk

Last Updated ( Wednesday, 08 July 2009 )
A Win for PKU Families
Written by Bryon McDowell   
Wednesday, 18 February 2009
The state of Tennessee was wrong to refuse to pay for medical foods for PKU patients.  Check out this article and spread the word.  You may want to call or write Chancellor Carol McCoy and thank her for her support.
 
Read the article from the Tennessean.
Last Updated ( Wednesday, 18 February 2009 )
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Donations can be mailed to:
Tennessee PKU Foundation
P.O. Box 681914
Franklin, TN 37068

www.justgive.org

 
 

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