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Tennessee PKU Foundation News
Knoxville PKU Cooking Workshop
Written by Bryon McDowell   
Monday, 26 September 2011

Another Great Success
BioMarin sponsored a PKU Cooking Workshop on Saturday, September 17, 2011 at the new UT Culinary Arts Institute on Neyland Drive in Knoxville. Designed for the culinary program, the foodservice equipment provided a place for our families to cook together in a commercial kitchen!  Bridget Reineking, MS, RD, CD of Medical College of Wisconsin Children’s Hospital spoke about nutrition and medical therapy for PKU. The presentation was interactive with lots of great questions and issues from the audience particularly on reasons why PKU patients need to drink their formulas and search out nutrient-dense foods. Erica Stelten spoke about Kuvan and briefly about the new phe meter which is still in production, but will not be out as soon as thought originally. Following was an excellent low phe cooking demonstration by Chef Jason Wyrick from Phoenix, Arizona. Chef Jason helped everyone cook in groups with new recipes for scrumptious “meatballs” and “sloppy joes” among some wonderful fruit and vegetable dishes including sweet potato fries….yum! Cooking with new fresh herbs really made the food very tasty and gave everyone some new ideas. We were then able to eat our cooking from the various recipes.

It was such a great learning opportunity for all of us and it allowed more families the opportunity to build our PKU community.

Last Updated ( Monday, 26 September 2011 )
My PKU Binder
Written by Bryon McDowell   
Sunday, 25 September 2011

The National PKU Alliance is pleased to share with you its newest resource on PKU management and care – My PKU Binder.  This comprehensive handbook represents the best thinking on daily PKU management and includes chapters based on age as well as chapters on dining out, traveling, emergency preparedness, insurance coverage and more!  You can also download handouts to give to daycare providers and teachers as well as sample letters of medical necessity.  We hope you get new tips and resources  from this new tool to effectively manage PKU.   Click to download the entire manual or look at the binder section by section at http://www.npkua.org/index.php/my-pku-binder.

Last Updated ( Sunday, 25 September 2011 )
Knoxville PKU Walk
Written by Bryon McDowell   
Thursday, 13 October 2011

The Knoxville PKU Walk is back on track!

Enjoy a fun-filled day at the fabulous Knoxville Zoo while raising awareness and funds for PKU research!
There will be door prizes, free low protein food/formula samples and updates on the latest research and developments in PKU treatment.
Saturday October 22; Check-in is from 9–9:45 a.m.
Walk begins at 10:00am
General assembly will be at 9:45 at the Chimp Ridge Tent.    Door prizes will be given after the walk during the assembly in Knoxville.

Knoxville Walk Flyer

Last Updated ( Thursday, 13 October 2011 )
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Donations can be mailed to:
Tennessee PKU Foundation
P.O. Box 681914
Franklin, TN 37068

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